The Objective Actigraphy Study in Sleep
Of Children with Intellectual Disability and their Sibling
ABOUT
What is OASIS?
OASIS is a direct at home sleep assessment of children with intellectual disability and their same household sibling. Our aim is to better understand the relationship between poor sleep and chronic ill health, as well as the impact on same-household sibling sleep.
How does it work?
In this study, sleep is indirectly measured through actigraphy which involves wearing a wristwatch device known as a Motion Watch to track movement on either the wrist or ankle.
Motion Watch
These sleep diaries are filled in by parents/carers and detail day-to-day happenings, when the watch was removed and when their child goes to sleep/wakes up.
Sleep and behaviour diaries
What happens in the study?
1. Questionnaire
You will be sent a link to the OASIS questionnaire and be asked to provide demographic information and consent.
2. Interview
A 30-40 minute phone call or Zoom interview will be arranged to discuss both children taking part in the sleep assessment.
3. Sleep Assessment
Both siblings will wear the watch for 10 days; a sleep and behaviour diary will be completed for each child by parents/carers.
4. Feedback Report
We will collate all the information and send a personalised feedback report for each child.
ASK interview
Caregivers can also take part in an optional Zoom interview with a member of our research team during the study period. This additional interview will be about overnight care needs, access to sleep services, family wellbeing and sibling support.
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